I want to say something profound

about my love for my children, but all I can think of is what Kailyn and I say to each other often. I love you more than infinity. We both can't think of how you can love someone more than infinity and try to be the first one to say it. She does a banter on the phone with Nanie about how much they love each other too.
My favorite is how Sam says he loves me (or anyone) He has never just came out and said that he loves me, but he says this in the same tone every time after I say I love you he says, "I wuv you too". He insists on kissing me on the cheek the same way every time too.
So, I love my kids infinity and always will.
Glad my parents love me infinity too.

Kailyn's necklace

Kailyn got a necklace in her stocking from Santa for Christmas. It is a silver necklace with a heart shape attached and a fake diamond on it. I got it from the dollar bin at Target. She Absolutely loves it. It is one of her favorite presents. When she is not using it she is putting it in what she calls her "treasure box". It is a box that her cousin Leon gave her for Christmas with fairies. She wrote a note and rolled it up tight and put it in the box along with other treasures. She drew two pictures of the necklace on the note and it went like this:

This is my treasure.
I got it on my 6 Christmas
I will pass it on in my family.
I love it.

I would take a picture if I had the energy right now, but many of you have seen it.
I wish I could predict the things that she would love before I fill the stocking up and now I wish I got two because if it breaks we are in trouble. Last year I could not buy anything out of the dollar bin for her stocking because she knew everything in it. I will have to remember to keep her out of Target before Christmas again next year so I can fill her stocking with everything in the dollar bin.

Not much going on.

But the kids are having fun. They had a snow day today and got to build a huge fort with Grandpa outside. Apparently Sam designed it. It was a huge dome that they could climb into and was really cool. They were dressed up so no body part was exposed. I am up even later than usual because I took a really late nap. Kailyn went to the endo yesterday and I could not go. They are trying to adjust her schedule, but it is hard to do when you are in a school setting with one nurse in charge of 450 kids. I have not been able to deal with the logistics, but figure it will change when she gets the pump in a month anyway. Her A1C level was 7.9, which is one fraction of a point from having to see Dr. Jerry.

They will probably put her on a stricter diet, which we are having a hard time feeding her as is. But, the higher A1C is a better case for the pump. They also were giving advice from readings right after vacation and her levels are completely different in school. I want her to have snacks and lunch at the other times that the other kids are so hopefully I can feel better soon to help straighten it all out. This reminds me that I need to e-mail the teacher and tell her that I can't volunteer tomorrow.

Sam is having another language burst. It is so great to hear. He is still a year behind, but the fact that he is making progress is such a blessing compared to a year ago at this time when we did not know if he would even be able to talk or be functional. Tonight he told me he did not want to sleep in his bed because it was too cold. I will take him to Kindergarten screening in a few months because they are getting all his info now. It will be interesting to see how he does and it might give us a case to get him another year in Woodfords. We don't plan on sending him to public K because he is a Sept baby on top of the fact that his expressive language is behind. He should be talking like Kailyn. I know that he won't qualify for summer school for sure because they are really tightening the standards.

Well, that is it for now, I feel really chatty tonight and hope to be up and taking care of my family asap. Off to e-mail the teacher.

Trip to Boston

Its been a while. Between Christmas and my new found obsession with catching up with old friends on facebook I have not blogged. I find it hard to write about the bad days and easier about the good. I should find one good thing about a day even if it is horrible, but rehashing anything in writing is giving me anxiety right now. Completely different than a few months ago when I would rant and rave about all the things that are/were going wrong. I think I am getting better about ignoring them, which could be a good thing or a bad thing.


Anyway, today was one of those fabulous days when you forget your worries and everything seems right in the world. (except for when you almost pass out in the American Girl store, which is a different story) I was reminded of why we had children and what a joy they are to be in my life.


We went to the New England Aquarium, McDonalds (easy to count carbs) The American Girl Store and Toys R Us to get something special for Sam. Each of them got money for Christmas that they could do what they wanted with. Save, spend etc.. Kailyn of course has wanted to go to American Girl for months. We talked about getting accesories and clothing for her new doll Kit, but I let it slip out of my mouth that she had enough money to buy a whole other doll. So, she looked for quite a while and then decided to get Kits best friend Ruthie with her money. She figures Grammie can help her make clothing for the girls on her sewing machine. ;)


Kailyn is estatic to say the least. She wants to collect all the dolls and get their beds. She also earned money today because we lost her lancet and had to manually do it, which is painful. So, for every painful poke she got $10 added to her money for the American girl store and ended up with pajamas for Ruthie and a t-shirt for Kit. I think we need to invest in a few more lancers because it would be less traumatic and less expensive. I felt really bad, but its something we really had to do.


I almost passed out when we were upstairs in the AA store because it was hot and overwhelming with all the little girls running around. Just glad I actually did not. We were in the hair salon part of the store (which had a six hour wait) and I was trying to make sure that what Kailyn had picked was what she really wanted. She assured me so we quickly went downstairs to get some air.


Before we went to the American Girl Store we went to the New England Aquarium. This was the kids first visit ever and they LOVED it. Their favorites were the penguins, sharks and turtles. Mine were the Scuba divers that jumped in the tank at 11:15am. We were lucky to get there early enough because it got completely crowded and hard to move around. This was a special Christmas present from Aunt Alice and would not have been possible without her. We enjoyed spending the day with her very much and hope to do similar things with her in the future.


Another big event of the day was being in Boston in itself. The kids have never seen big buildings and a city as big as Boston. Kailyn has, but she was a baby. They were amazed at how tall the buildings were and how many people there were. We could not have asked for better behaved kids today either. They were perfect. For as much trouble that they give Seth and I when we are alone with them they certainly know how to pull it together when we are doing special things.


So, all in all it was a great day. The kids learned a TON, we had a great positive outing experience as a family (our first since K's diagnosis) and we feel blessed to have family and friends on both sides that made it possible.
It's back to reality tomorrow, but today was a wonderful break.


The following are a few pictures from the day:

We had a great Thanksgiving

The kids had a lot of fun going to Nanie and Grampa's house and playing with their cousins. They also got to see Kyleigh and Graham a little more over the weekend. They both were healthy the whole week. (Kailyn had the week off) Sam now has a cold and Kailyn is developing it. Hopefully it won't slow Kailyn down. It has not slowed Sam down. :)

The Christmas craft frenzy has begun. Kailyn whipped through all the crafts in the house that she could last week. She made ornaments, painted ornaments, put up the tree and made a gingerbread house. I held her off from decorating the house in full force. She wants me to make a wreath(I told her to ask Grammie lol) and she currently has us working on making construction paper garland. (I bought the paper today and I am trying to hold her off) I decided that I am going to just let them decorate the tree however they want. They are the ones that enjoy it the most, so why not?

Sam is really into drawing and writing his name lately. The bare walls in his room are his favorite place to do this. Thankfully, we have washable markers so it is easy to get off, but I hate erasing his creations because they are so clear and big. I get excited. I never thought I would be excited about my children drawing pictures and writing their names on the wall. We talk about how we just write on paper all the time and I think he is starting to resist the urge, but I have also kept track of the markers and pens a little better lately.

Kailyn and Sam suffer from licking hands and spoon syndrome. If you receive a baked or made item from us make sure you ask me if it is contaminated or not. I try to let them do their own little batch because they just can't resist themselves, particularly with the butter. I tell Sam not to lick, have him repeat it and then I turn around and he is licking butter. He knows he should not and you can see that he knows it in his face, but the urge for the butter on his tongue is just too strong.

We made a Gingerbread house (don't worry, the gingerbread was store bought, I am not that ambitious) and both kids licked their fingers continuously. It was the last "baking" project for the weekend and most people won't eat the candy off of Gingerbread houses, except for my kids. I have to keep track of Kailyn sneaking the candy off. I can see that they are doing it because broken frosting is all around the house. Gingerbread houses are not great to have with young diabetics in the house, but I am determined to not change too much about the holiday's. We just make sure we do the eating on her schedule, which thankfully is every two hours. I decided that baking in the middle of the afternoon is the best because Kailyn has some free carbs then. She needs every free carb she can get because of all the licking. I guess I need to stop writing because Kailyn just brought construction paper up to me. :)

Below are a few pictures from Thanksgiving.