We are home from the hospital!!

We are thrilled about that, however things are hectic and it is hard trying to figure out how to manage this disease. We want to do things perfectly and it is not a perfect science. On top of the diabetes both kids have hand, foot and mouth disease, which is making Sam absolutely miserable. It is difficult to gage what Kailyn will be eating when she feels ill too so giving the insulin accordingly is tricky. Treating diabetes sounds easy in theory; prick a finger five times a day and give a shot 5 times, but it is way more complicated than that. We hope to have this all sort of figured out by the end of the weekend so things won't be too hectic when I have all the kids alone. I think we also need a day of rest at home so that we can start to think more clearly.

Its hard to come to terms with the fact that your child has a chronic condition and will have it for the rest of her life. We always took solace in knowing that we produced one child that was not going to have special needs so that was sort of a kick in the gut. But, on the bright side we know that it will get better as we get used to it. (at least the doctor told us this) She is still the same bright, bubbly and happy little girl that she always was. Also, Sam continues to amaze us all the time as well and we are starting to feel like he will be ok. Kailyn is feeling so much better now that her body is converting her food to fuel correctly.

Kailyn was sad because her vacation at the hospital ended today. The Barbara Bush children's Hospital makes the kids feel like they are in a resort. They had a circus come while we were there. A play room with any craft project that you could dream of. All the DVD's in the world and presents for her at every corner.
She rode home with my Mom after we stopped at TRU (To get more toys that we had bribed her with) and said "Well, I guess my vacation is over" LOL

Now I need to talk about Doctor Jerry. Kailyn's Pediatric Endocrinologist. He was amazing and knows his stuff. He spent so much time with us and we could not have asked for a better doctor. He is a Nut (quite the character), but he makes you laugh and feel quite confident that everything will be ok by the time you leave the hospital. Kailyn would not talk to him. She played shy with a lot of the staff. Below is a picture of them that shows exactly the relationship they have and the face Kailyn always made when he was around. We feel very blessed to have received such a wonderful doctor.

Which takes me to my last thought. We are very blessed to have such supportive parents. We would not know what we would do without our Grammie, Nanie and two Grandpa's. We appreciate everything they do for us and love them more than words can say.