Kailyn seems to be doing really well in school. Her teacher said that she was a nice girl. She consistently comes home with 3's and 4's on her papers (A's and A+'s), except for spelling, but she has excepted that it is not her strong subject and she will do her best and feel good about that. She will start Chorus and Cheer Leading within the week. Soccer did not work out, but it was not surprising. She is going to try and earn her "bribe" in other ways. ;) We went to the Endocrinologist early last week and her A1C was good. The staff was surprised that we were doing so well considering everything else that was going on.
I have spoken to both the Kindercamp staff and Sam's Kindergarten teacher about Sam. Both say that they enjoy him and he is doing really well. Just a little loud (we knew that one already ;)) Sam is receiving Reading and Math Title 1 services during regular Kindergarten. We fully expected he would qualify for this. This is not Special Education, so he is still considered to be going to Kindergarten without any supports. Hearing the info about his behavior today made me feel really good. He lets me know about the kids that do have poor behavior though. lol A far cry from what we thought would happen 3 years ago.
After calls to the Epilepsy specialist in Boston pleading for an appointment earlier we secured an appointment for 2 weeks from now. This is so much better than waiting 1 1/2 months. Her med increases don't seem to do much, but make her tired. Her Neurologist here is nice, but he does not specialize in Epilepsy and is too slow to respond. He also seems to be doing some things backwards. I expect nothing less than prompt, truly committed service when it comes to dealing with my child's brain and development. With blood sweat and tears (a little dramatic ;) ) she is finally begrudgingly bearing weight on her legs. She hates it, but it has to be done. Huge accomplishment. :)
I am tired, but I feel good that things are moving forward. I even made myself an appointment to see the Doctor and Dentist !! I just need to remember to go to them.
3 comments:
I'm SO happy you're being seen more quickly!
...danielle
Thanks Danielle! We are too. I was going to e-mail you the news, but you got to read it first ;)
haha...yeah I'm a stalker like that!
...d
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