Thursday, September 25, 2008

We went to the Endocrinologist

on Tuesday. I am going to try to be quick before someone needs something. Graham Bam is giving up napping for me the last few days so I don't get much time.(10 minute naps) Anyway, it went well. Kailyn is doing as well as can be expected and we are doing a good job controlling her levels. Her A1c was an 8.1 and they want it to be 7 or below. This is the average over a few months period of her blood glucose. The higher the level the higher the risk for complications in a specific amount of time. Her level was 11 when she was admitted to the hospital. They adjusted her meds, but now her levels are through the roof
(489) right now. (the nurse just called) So, I put a call back into the Doctor.

The Doctor and Seth both called the principal to see if he knew what was going on in his school regarding the 504. Apparently, he did not and did not sound happy Seth said, but this does not mean he will do the right thing either. I Highly doubt that the school dept wants the civil rights division investigating them as the new Asst.Dir told us to do. There is a process you are supposed to follow before it even gets to that and she apparently is unaware?? So, we are waiting to here back from him to see where we go next. We are going to get legal advice from the ADA and Pine tree legal and they can even provide representation for us if need be. I will pick Kailyn up every day from school from now on.

We are taking a "break" from Sam's school for the time being. We have 2 weeks to make a final decision and then we can meet with them.(I spoke with the Director yesterday) It's hard to make a decision with everything else going on. He asked to go to school today.

Just heard from the doctor (mid posting) and now I have to call the school nurse back and adjust her levels again.

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