I am doing this along with my Mom and Sister. Anyone else that would like to join the team is welcome to as well. Our teams name is Team Kailyn. The walk will take place on September 21, 2008 in Portland Maine at 11am.
Here is a good explanation of why we are doing this:
Why Walk
We would all love to see a cure as soon as possible preferably early in Kailyn's life so that she does not have to deal with the day to day stuff or any complications that may follow.
If you care to donate or join Team Kailyn just click the link and follow the prompts on the following page.
Walk for Kailyn
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